Each person experiences myelofibrosis (MF) differently, which can make navigating symptoms daunting.
Despite increased focus on resources in the past decade, there is a need for a clearer roadmap to help those impacted by MF and their loved ones chart their next steps to better navigate the disease.
Mapping Myelofibrosis is an initiative designed to increase awareness of this complex blood cancer, which can be difficult to diagnose. Whether you, or someone you care for, has been living with this disease for years, or is experiencing symptoms without a diagnosis, Mapping Myelofibrosis connects the community with educational tools, resources and stories to help navigate all aspects of the disease and help encourage conversations with your healthcare provider.
This initiative is being developed with input from:
MPN Research Foundation (MPNRF) is an independent body bringing together the voices of the patient and their caregivers living with a MPN (myeloproliferative neoplasm) and the researchers and clinicians seeking answers for MPN patients. MPNRF supports multiple efforts to increase awareness of MPNs and advancements of all validated, promising, and impactful approaches to better outcomes for patients.
MPN A&E International provides educational programs, materials, and resources for patients, caregivers, physicians, and entire healthcare teams to improve their understanding of myelofibrosis, polycythemia vera, and essential thrombocythemia. They are dedicated to making a difference in the lives of those affected by MPNs and strive to grow awareness and advocate on behalf of the entire MPN community.